Treatment and Post‐treatment Decisions in SMA: What it Looks Like for Patients, Caregivers, and Families

Live on Wednesday July 28, 2021
from 5:00 PM - 6:00 PM ET

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Becoming Empowered with CIDP: Making My Voice Heard

Live on Thursday, August 5, 2021
10:00 AM -11:00 AM ET

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Caring for a Loved One with DEE and Dravet Syndrome

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Dravet Syndrome and Caregiving: Your Voices Heard and Answered

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Obtaining Support and Ongoing Care for Children with SMA after Gene Replacement Therapy

A 6 Module Series

Now available on demand

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Dravet Syndrome and Your Family: Diagnosis, Treatment, Family Needs, and Support

A 6 Module Series

Now Available On Demand

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A Closer Look at Hemophilia Management: Improving Outcomes with Personalized Care

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Humanistic and Economic Burden of Dravet Syndrome: Multidisciplinary Approach to Recognize and Address

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Living with Hairy Cell Leukemia: Taking Charge of My Health

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We partner with leading clinical specialists and advocacy organizations to bring free online education to patients and caregivers dealing with rare diseases. RareDiseaseLive‘s programs are broadcast live through our virtual learning channel and include a panel of experts, interactive Q&A, polling and slides for an immersive and personalized learning experience.

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Carcinoid Syndrome

Our program about Carcinoid Syndrome is available on demand

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Diagnosis and Treatment

A collection of articles on the different pulmonary function tests, explaining the tests and how they are conducted, what to expect, and what is typical with ILD. They are part of an expanding section on Diagnosis and Treatment of ILDs.

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Treatment and Post‐treatment Decisions in SMA: What it Looks Like for Patients, Caregivers, and Families

Becoming Empowered with CIDP: Making My Voice Heard

Caring for a Loved One with DEE and Dravet Syndrome

Dravet Syndrome and Caregiving: Your Voices Heard and Answered

Obtaining Support and Ongoing Care for Children with SMA after Gene Replacement Therapy

A 6 Module Series

Dravet Syndrome and Your Family: Diagnosis, Treatment, Family Needs, and Support

A 6 Module Series

A Closer Look at Hemophilia Management: Improving Outcomes with Personalized Care

Humanistic and Economic Burden of Dravet Syndrome: Multidisciplinary Approach to Recognize and Address

Living with Hairy Cell Leukemia: Taking Charge of My Health

WELCOME TO RAREDISEASELIVE

Diagnosis and Treatment

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