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WELCOME TO RAREDISEASELIVE

We partner with leading clinical specialists and advocacy organizations to bring free online education to patients and caregivers dealing with rare diseases. RareDiseaseLive‘s programs are broadcast live through our virtual learning channel and include a panel of experts, interactive Q&A, polling and slides for an immersive and personalized learning experience.

Now On-Demand
New educational program on IPF
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Carcinoid Syndrome
Our program about Carcinoid Syndrome is available on demand
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IPD - Diagnosis and Treatment Chart

Diagnosis and Treatment

A collection of articles on the different pulmonary function tests, explaining the tests and how they are conducted, what to expect, and what is typical with ILD. They are part of an expanding section on Diagnosis and Treatment of ILDs.

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Partners and Supporters

  • NORD
  • ILD Collaborative
  • The Carcinoid Cancer Foundation
  • PlatformQ Health