Learn more about our programs

About Us


“Our mission at RareDiseaseLive is to empower patients and caregivers by providing easy access to the latest information.”


RareDiseaseLive is a new online education platform dedicated to improving the health outcome and quality of life for people living with rare diseases. 

Developed by PlatformQ Health, the leading provider of live online medical education, RareDiseaseLive’s programs include a live panel of specialists — such as doctors, nurse practitioners and advocacy group leaders — interactive question and answer sessions, audience polling, patient testimonials, and comprehensive slide presentations.

Streamed live and later made available on demand, our events provide easy access to vital information for patients and caregivers.

Future programs will focus on other topics related to different rare diseases, and if you or someone you care about is dealing with one, we hope you’ll join our growing community of patients, caregivers and medical professionals.


Register here to receive email updates and support resources from RareDiseaseLive.