Produced in collaboration with GBS | CIDP Foundation
Support for this patient education program was provided by argenx US Inc., CSL Behring, and Grifols.
Because a diagnosis of CIDP (chronic inflammatory demyelinating polyradiculoneuropathy) can be delayed for numerous reasons, it is essential that patients are educated about the disease and encouraged to take a proactive role in self-care. Patients need to be familiar with both current and emerging management approaches, potential side effects, benefits of lifestyle changes, and strategies to effectively communicate preferences and treatment goals to their doctors and other care providers.
You are invited to watch this educational 1-hour session led by an expert neurologist, who is joined by a patient advocacy representative and a patient with CIDP. They discuss CIDP and review the questions every patient should be empowered to ask their doctors and other care-team members. Learn exactly what CIDP is, how it differs from other neurological disorders, how you can help reduce time to diagnosis if you experience symptoms, and how to advocate for yourself and your care if you are diagnosed. Current and emerging treatments are compared, along with the reasons that new agents are needed. The potential benefits of diet, exercise, alternative therapies, and participation in clinical trials are explored.
Peter Donofrio, MD
Professor of Neurology, Vanderbilt University Medical Center, Vanderbilt University Medical Center
Peter Donofrio, MD, is professor of neurology, vice chair of compliance and professionalism, chief of the Neuromuscular Division and director of the EMG laboratory, MDA clinic and the ALS clinic at Vanderbilt University Medical Center (VUMC) in Nashville, Tennessee. His career has focused on the management of neuromuscular disorders including peripheral neuropathy, muscle diseases, neuromuscular junction disorders, and motor neuron disease. Dr Donofrio has been involved in many clinical trials in ALS, myasthenia gravis, and CIDP over the past 40 years. He is the author of 108 manuscripts in peer-reviewed journals and the author or co-author of 16 book chapters and 13 monographs for national meetings. Dr Donofrio was awarded the VUMC Neurology Resident teaching award in 2014 and 2018.
Executive Director, GBS/CIDP Foundation International
Lisa Butler is the executive director of the GBS/CIDP Foundation International in Narberth, Pennsylvania. Ms Butler has a 10-year career in marketing and event planning for nonprofit organizations. Before assuming her current position as executive director, she managed the Foundation’s marketing and development programs, and was recognized by Patient Services, Inc. (PSI) with the 2016 Extraordinary Support Award. Ms Butler first of learned of the Foundation in 1992 (prior to joining the staff in 2013) when her father-in-law was diagnosed with Guillain-Barre syndrome (GBS).Ten years later, her son, Stuart, was diagnosed with GBS. Following Stuart’s recovery, she became the parent liaison for the Foundation for “parents with children diagnosed with GBS”.
Interview Participant - Patient
Interview Participant - Caregiver